|
Acid Maltese
|
www.members.aol.com/amdapage/index.htm
|
|
Acidemia
|
www.oaanews.org
|
|
Acoustic Neuroma Association
|
www.anausa.org
|
|
Adrenal Disorders
|
medhlp.netusa.net/www/nadf.htm
|
|
Aids
|
- www.ashastd.org
- www.wdcnet.com/pedsaids
|
|
Alagille Syndrome
|
www.athnet.net/~luxhoj/alagillesyndrome.html
|
|
Albinism
|
www.albinism.org/
|
|
Allergy and Asthma
|
- www.aafa.org
- www.foodallergy.org
- www.aanma.org
|
|
Almstrom Syndrome
|
www.jax.org/alstrom
|
|
Amputation
|
www.amputee-coalition.org
|
|
Anathalmia
|
www.ioi.com/ican
|
|
Anemia
|
www.aplastic.org
|
|
Anorectal Malformation
|
www.members.aol.com/pullthruw/Pullthru.html
|
|
Aphasia
|
www.aphasia.org
|
|
Apnea
|
www.sleepapnea.org
|
|
Ataxia
|
- www.ataxia.org
- www.med.jhu.edu/ataxia/
|
|
Attention Deficit Disorder
|
- www.infonetwork.com
- www.add.org
|
|
Autism
|
- www.autism-society.org/
- www.aarda.org
|
|
Balance Disorders
|
www.infolane.com/bdsra
|
|
Bereavement Support
|
www.compassionatefriends.org
|
|
Birth Defects
|
www.birthdefects.org
|
|
bone Marrow Transplant
|
www.bmtnews.org
|
|
Bowell Dysfunction
|
www.iffgd.org
|
|
Brain injury
|
www.biausa.org
|
|
Burns
|
www.burns-phoenix-society.org
|
|
Brain Tumor
|
www.tbts.com
|
|
Cancer
|
www.cancer.org
|
|
Cerebral Palsy
|
www.charcot-marie-tooth.org
|
|
Charge Syndrome
|
www.chargesyndrome.org
|
|
Chromosome 13 & 18 Disorders
|
- www.trisomy.org
- chr18.uthscsa.edua
|
|
Chromosome 11 & 22
|
www.nt.net/na815/chr22.html
|
|
Chronic Fatigue Syndrome
|
www.cfids.org
|
|
Cleft Palate
|
www.cleft.com
|
|
Coffin-Lowry Syndrome
|
www.freeyellow.com/members/clsf/index.html
|
|
Connective Tissues Disorders
|
www.marfan.org
|
|
Cooley's Anemia
|
www.thalassemia.org
|
|
Cornelia de Lange Syndrome
|
www.cdlsoutreach.org
|
|
Craniofacial Disorders - General
|
- www.masterlink.com/children
- www.faceit.org/~facit/
|
|
Cri Du Chat Syndrome
|
www.fiveminus.org
|
|
Crohns Disease
|
www.ccfa.org
|
|
Cyclic Vomiting Syndrome
|
ezinfo.ucs.indiana.edu/~jdbickel/cus.html
|
|
Cystinosis
|
www.cystinosisfoundation.ucsd.edu
|
|
Deaf-Blind
|
www.helenkeller.org
|
|
Diabetes Insipidus
|
www.diabetes.org
|
|
Down Syndrome
|
- www.ffcwds.org
- www.ndss.org
- www.pennet.com/chuckdet/index.html
|
|
Dyslexia
|
- www.dyslexia-add.or
- www.pie.org/ods
|
|
Dystonia
|
www.dystonia-foundation.org
|
|
Dystrophic Epidermolysis Bullosa
|
www.debra.org
|
|
Ehlers Danlos Syndrome
|
www.phoenix.net/~leigh/eds
|
|
Epilepsy
|
- www.aesnet.org
- www.efa.org
|
|
Erb Palsy
|
www.customforum.com/nationalbpi
|
|
Fabry Disease
|
www.mssm.edu/crc/fabry
|
|
Facio Scapulo Humeral Muscular Dystrophy
|
www.disability.ucdavis.edu
|
|
Fatty Oxidation Disorder
|
www.cinternet.net/FOD
|
|
Faucher Disease
|
www.gaucherdisease.org
|
|
Fetal Alcohol Syndrome
|
www.accessone.com/~delindam/
|
|
Fragile X
|
www.qorz/net/frax
|
|
Freeman-Sheldon Syndrome
|
www.fspsg.org
|
|
Galactosemia
|
www.galactosemia.org
|
|
Gastrointestinal Disorder
|
www.galactosemia.org
|
|
Gaucher Disease
|
www.gaucherdisease.org
|
|
Genetic Disorder
|
www.geneticalliance.org
|
|
Glaucoma
|
www.glaucoma.org
|
|
Goldenhar Syndrome
|
www.GOLDENHAR.com
|
|
Granulomatous Disease
|
www.pacific.net.net/amhurley
|
|
Group B Strep
|
www.groupbstrep.org
|
|
Growth Disoders
|
- www.genetic.org/hgf
- www.magicfoundation.org
|
|
Guillen-Bare Syndrome
|
www.webms.com/gbs
|
|
Hearing Impairments
|
- www.agbell.org
- www.deafchildren.org
- www.digitalnation.org
- www.drf.org
- www.leisurelan.com~hearnow/
- www.jobntracyclinic.org
- www.nad.com
- www.cuedspeech.org
|
|
Heart Disorders
|
- www.amhrt.org
- www.csun.edu/~hfmth006/chser/chaser-news/html
- www.sads.org
|
|
Hemophilia
|
www.hemophilia.org
|
|
Hermansky-Pudlak Syndrome
|
www.medhlp.org/web/hspn.htm
|
|
Hermaphroditism
|
www.isna.org
|
|
Hernia
|
www.gloryroad.net/~cherubs
|
|
Histocytosis X
|
www.histio.org
|
|
Hydrocephalus
|
- www.heurosurgery.mgh.harvard.edua/ha
- www.geocities.com/HOTSPRINGS/vila/2300
|
|
Immune Disorders
|
www.primaryimmune.org
|
|
Incontinence
|
www.nafc.org
|
|
Incontinentia Pigmenti Archromians
|
www.medhlp.org/ww/nipf.html
|
|
Joubert Syndrome
|
www.erols.com/joubert
|
|
Kidney Disorders
|
- www.arbon.com/kidney
- www.kidney.org
- www.kumc.edu/pkfoundation.org
|
|
Klinefelter Syndrome
|
www.medhelp.org/web/ks.htm
|
|
Klippel Trenaunay Syndrome
|
www.umn.edu/vesse001
|
|
Latex Allergy
|
www.latexallergyhelp.com
|
|
Learning Disability
|
- www.ldanatl.org
- www.ncld.org
- www.geocities.com/athens/1105
|
|
Leukemia
|
www.leukemia.org
|
|
Lipomyelomeningocele
|
www.home.ptd.net/~ifsn
|
|
Lissencephaly
|
www.lissencephaly.org
|
|
Liver Disorder
|
- www.liverfoundation.org
- www.livertx.org
|
|
Lowe Syndrome
|
www.medhlp.org/lowesyndrome
|
|
Lund Disorder
|
www.lung.usa.org
|
|
Lupus
|
- www.lupus.org/lupus
- www.holausa.com/lupustemp
|
|
Lyme Disease
|
www.lyme.org
|
|
Macular Disease
|
- [email protected]
- www.eyesight.org
- www.mhaus.org
|
|
Maple Syrup Urine Disease
|
www.msud-support.org
|
|
Marfan
|
www.marfan.ca
|
|
Mast Cell Disease
|
www.gil.com.au/comm/mast
|
|
Mental Health
|
- www.cals.com/vikings/nami
- www.nami.org
- www.cais.com/nikings/nami
|