Parent Websites

Parent Websites

Listed below is a list of national organizations' websites for specific disabilities and types: 
 

Acid Maltese

www.members.aol.com/amdapage/index.htm

Acidemia

www.oaanews.org

Acoustic Neuroma Association

www.anausa.org

Adrenal Disorders

medhlp.netusa.net/www/nadf.htm

Aids

www.ashastd.org
www.wdcnet.com/pedsaids

Alagille Syndrome

www.athnet.net/~luxhoj/alagillesyndrome.html

Albinism

www.albinism.org/

Allergy and Asthma

www.aafa.org
www.foodallergy.org
www.aanma.org

Almstrom Syndrome

www.jax.org/alstrom

Amputation

www.amputee-coalition.org

Anathalmia

www.ioi.com/ican

Anemia

www.aplastic.org

Anorectal Malformation

www.members.aol.com/pullthruw/Pullthru.html

Aphasia

www.aphasia.org

Apnea

www.sleepapnea.org

Ataxia

www.ataxia.org
www.med.jhu.edu/ataxia/

Attention Deficit Disorder

www.infonetwork.com
www.add.org

Autism

www.autism-society.org/
www.aarda.org

Balance Disorders

www.infolane.com/bdsra

Bereavement Support

www.compassionatefriends.org

Birth Defects

www.birthdefects.org

bone Marrow Transplant

www.bmtnews.org

Bowell Dysfunction

www.iffgd.org

Brain injury

www.biausa.org

Burns

www.burns-phoenix-society.org

Brain Tumor

www.tbts.com

Cancer

www.cancer.org

Cerebral Palsy

www.charcot-marie-tooth.org

Charge Syndrome

www.chargesyndrome.org

Chromosome 13 & 18 Disorders

www.trisomy.org
chr18.uthscsa.edua

Chromosome 11 & 22

www.nt.net/na815/chr22.html

Chronic Fatigue Syndrome

www.cfids.org

Cleft Palate

www.cleft.com

Coffin-Lowry Syndrome

www.freeyellow.com/members/clsf/index.html

Connective Tissues Disorders

www.marfan.org

Cooley's Anemia

www.thalassemia.org

Cornelia de Lange Syndrome

www.cdlsoutreach.org

Craniofacial Disorders - General

www.masterlink.com/children
www.faceit.org/~facit/

Cri Du Chat Syndrome

www.fiveminus.org

Crohns Disease

www.ccfa.org

Cyclic Vomiting Syndrome

ezinfo.ucs.indiana.edu/~jdbickel/cus.html

Cystinosis

www.cystinosisfoundation.ucsd.edu

Deaf-Blind

www.helenkeller.org

Diabetes Insipidus

www.diabetes.org

Down Syndrome

www.ffcwds.org
www.ndss.org
www.pennet.com/chuckdet/index.html

Dyslexia

www.dyslexia-add.or
www.pie.org/ods

Dystonia

www.dystonia-foundation.org

Dystrophic Epidermolysis Bullosa

www.debra.org

Ehlers Danlos Syndrome

www.phoenix.net/~leigh/eds

Epilepsy

www.aesnet.org
www.efa.org

Erb Palsy

www.customforum.com/nationalbpi

Fabry Disease

www.mssm.edu/crc/fabry

Facio Scapulo Humeral Muscular Dystrophy

www.disability.ucdavis.edu

Fatty Oxidation Disorder

www.cinternet.net/FOD

Faucher Disease

www.gaucherdisease.org

Fetal Alcohol Syndrome

www.accessone.com/~delindam/

Fragile X

www.qorz/net/frax

Freeman-Sheldon Syndrome

www.fspsg.org

Galactosemia

www.galactosemia.org

Gastrointestinal Disorder

www.galactosemia.org

Gaucher Disease

www.gaucherdisease.org

Genetic Disorder

www.geneticalliance.org

Glaucoma

www.glaucoma.org

Goldenhar Syndrome

www.GOLDENHAR.com

Granulomatous Disease

www.pacific.net.net/amhurley

Group B Strep

www.groupbstrep.org

Growth Disoders

www.genetic.org/hgf
www.magicfoundation.org

Guillen-Bare Syndrome

www.webms.com/gbs

Hearing Impairments

www.agbell.org
www.deafchildren.org
www.digitalnation.org
www.drf.org
www.leisurelan.com~hearnow/
www.jobntracyclinic.org
www.nad.com
www.cuedspeech.org

Heart Disorders

www.amhrt.org
www.csun.edu/~hfmth006/chser/chaser-news/html
www.sads.org

Hemophilia

www.hemophilia.org

Hermansky-Pudlak Syndrome

www.medhlp.org/web/hspn.htm

Hermaphroditism

www.isna.org

Hernia

www.gloryroad.net/~cherubs

Histocytosis X

www.histio.org

Hydrocephalus

www.heurosurgery.mgh.harvard.edua/ha
www.geocities.com/HOTSPRINGS/vila/2300

Immune Disorders

www.primaryimmune.org

Incontinence

www.nafc.org

Incontinentia Pigmenti Archromians

www.medhlp.org/ww/nipf.html

Joubert Syndrome

www.erols.com/joubert

Kidney Disorders

www.arbon.com/kidney
www.kidney.org
www.kumc.edu/pkfoundation.org

Klinefelter Syndrome

www.medhelp.org/web/ks.htm

Klippel Trenaunay Syndrome

www.umn.edu/vesse001

Latex Allergy

www.latexallergyhelp.com

Learning Disability

www.ldanatl.org
www.ncld.org
www.geocities.com/athens/1105

Leukemia

www.leukemia.org

Lipomyelomeningocele

www.home.ptd.net/~ifsn

Lissencephaly

www.lissencephaly.org

Liver Disorder

www.liverfoundation.org
www.livertx.org

Lowe Syndrome

www.medhlp.org/lowesyndrome

Lund Disorder

www.lung.usa.org

Lupus

www.lupus.org/lupus
www.holausa.com/lupustemp

Lyme Disease

www.lyme.org

Macular Disease

www.macula@macula.org
www.eyesight.org
www.mhaus.org

Maple Syrup Urine Disease

www.msud-support.org

Marfan

www.marfan.ca

Mast Cell Disease

www.gil.com.au/comm/mast

Mental Health

www.cals.com/vikings/nami
www.nami.org
www.cais.com/nikings/nami
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